Welcome to Endometriosis and PCOS Support

[Admin]

Hello, and welcome to endometriosis and PCOS Support group. My name is Carrie, the group founder. Endometriosis and PCOS are diseases that are mis-understood and often not diagnosed for many years. Many women are often confused, lost, alone and need other women for support. I was diagnosed with endometriosis in 2003 and had no idea what is was, except for the brief explanation from my doctor.
I did alot of research and was blown away and very upset. I could not understand why this was happening to me.
I was lucky enough to find a wonderful doctor after many years of horrible ones. The whole time, of getting information for why I was in pain, why I had this problem or another, the only thing that mattered to me was infertility problems. I cried days on end and wondered if I would ever have children of my own.
When I finally met my current OBGYN (specialist for endo/pcos)I told him my problems and my concerns and explained how my dh and I were TTC and could not get preg.
He did a U/S and many blood tests and told me he thought it could possibly have endo, but the only way to really tell was through a lap.
But it was my choice to either have surgery, or just start meds and hope they work to get pregnant.
I decided to have surgery, it seemed like the only answer.
I had surgery and he said I had sage 3 endo, and the endo had glued my bowel to my ovaire. Which would be the reason for bowel problems and back pain.
He also said I have the beginnings of PCOS and wanted to start me on metfromin. After a few months I started clomid, then was also put on estridiol and progesterone. Finally after 9 mos. after my surgery I got my very first BFP on a hpt. The happiest day of my life.
9 mos later I delivered a beautiful little girl named Emily Jewel B. She is my miracle.


We are currently TTC #2, I have done 2 mos. of clomid so far and nothing My cycles have been really screwy too. As I'm 3 weeks late and not preg.

Anyways, please introduce yourself.
You don't have to write a huge book like I did, but we would all like to know a little about you and your story.

I am very glad for all the members that have joined, and I hope we become a large supporting group.

If there is anything I can ever do please feel free to PM me



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Please tell us a bit about yourself:


Name:
Age:
When were you diagnosed with endometriosis or PCOS?
What stage endo do you have?
What symptoms do you have?
Have you done/are you doing Lupron therapy?
Any other info you want to share...

[detsey]

hi im Bernadette im 20 and have been diagnosed with PCOS. im very over weight as the doctors keep telling me(like i need that), i have dark hair where i wish i didn't and my periods are way off track. i have been given metformin but i keep forgetting to take it and im scared to go back to the doctors in case iv put on more weight and it dunt help when u don't get the same doctor as before.

[Admin]

Hi Bernadette, welcome to the group. I'm sorry that you are also dealing with PCOS. I def. know how you feel. I was told at my last doctor appointment I needed to lose weight and watch my carbs. It hurts hearing those words, when we already know it.
I had a hard time remembering when to take my meds, I came up with an idea of setting the alarm on my cell phone to remind me to take them, and so far so good. I have been doing really good and now I look for my alarm when it is time to go off.
Perhaps we could have a place in here to discuss weight issues so we can encourage each other and post good diet tips and recipes.
If you ever have any questions please feel free to PM me any time.

[mamanickie26]

Hi. My name is NIckie. I'm 26 I lilve in phoenix az. I have 2 beautiful girls and a Handsome Boy. I was just diagnosed with endo sept 4th 07 and had my first lap done sept 28th. I am in more pain now than ever and I am debating takin Lupron(dr reccomended). I just got remarried in July and my Husband and I want sooo bad to have a baby together one day and I am really scared that our chances are going to be really low when the time is right for us to start trying. I am a nurse and I know how hard it is for women with endo to get prego and I think knowledge is not my alli right now b/c it is stressing me out even more. I really wish I could find an alternative therapy to this without destroying my chances of having a baby later and not have to suffer the horrible side effects of Lupron.

[Admin]

Hi and welcome. Sorry that you have endo, but I'm glad we are here for your support. Did your doctor remove the endo? I was dx with endo in 2003, after my surgery my doctor put me on clomid and it took 3 mos. and I got preg. with it.
We are trying again, but this time is taking so much longer. I just finished taking Lupron in Feb. because it was horrible. I gained 45 lbs. I was losing my hair, I bled the entire time on it, my pain actually got worse and the mood swings and night sweats were un-Godly. Ever since I have stopped I have not had a period without the help from provera to induce it and it just makes me mad because I know that is why I am not getting preg. I have been taking clomid again as well but I think my body just needs to get rid of the lupron from my system.
Anyways, I wish you lots of luck trying to have a baby. My doctor told me the best time to get preg. is right after having a lap done. I would also do research on lupron before taking it.

Also, how long have you been a nurse? I am in nursing school and will be done in August, I cannot wait

[mamanickie26]

I have been a nurse for almost 4 years now. I am going back to school next year to get my RN. Thanks for the advise on the Lupron, I don't know what I'm going to do yet. My Dr. removed the endo, but my pain has been worse since he did, its really weird.

[Admin]

I hear ya. I had surgery a few mos. ago and my pain is soo bad already. Makes me soo angry.
Good luck with your descion and good luck with school. Are you going to do online school? I know they have schools where you can do LPN-RN all online.

[lbassin]

Hi everyone. My name is Linnea. I turn 30, Feb 2nd. I have beautiful twin girls who will turn 3 in Feb also. I was diagnosed with endo when my hubby and I were trying to get pregnant with the girls. It took us 3 years to get them. I had a lap done and 3 months later I was pg with the girls.

I am scheduled for another lap on Jan 15th. I am getting very nervous about this. Hopefully it will all go well. I think my endo has gotten worse though. I am having bowel issues I never had before.

Linnea

[Admin]

Hi everyone. My name is Linnea. I turn 30, Feb 2nd. I have beautiful twin girls who will turn 3 in Feb also. I was diagnosed with endo when my hubby and I were trying to get pregnant with the girls. It took us 3 years to get them. I had a lap done and 3 months later I was pg with the girls.

I am scheduled for another lap on Jan 15th. I am getting very nervous about this. Hopefully it will all go well. I think my endo has gotten worse though. I am having bowel issues I never had before.

Linnea

Welcome . Congrats on your twins. Did you do fertility treatment?
I know surgery is scary, but I will say some prayers for you that it all goes well and find out why you are having problems with your bowel.
I had problems before and my doct. said that my endo glued my bowel to my left ovary.
Hopefully that is not the case with you.
Please let us know how it goes.
Good luck.

[Admin]

BTW, who is your doct.? I notice your in michigan and curious to see if we have the same doct.
I have a great doct. I just love him.